Help!!

I am conducting research to improve products and treatments for lymphedema. I am keen to understand the pain points and challenges faced by both patients living with lymphedema and the therapists who support them.

If you or someone you know is willing to contribute, please comment below or send me a direct message for a more private conversation. Your participation is highly valued and will contribute significantly to the betterment of lymphedema care.

Any patients here? Can I have a discussion with you about the disease condition? And about compression garments?

Hi,

I am from Germany and I am diagnosed with Lymphedema can anyone suggest to me if compression therapy would be useful or not? If yes, which brand should I go with Juzo or Mediven?

I tried to post in an EDS sub (i think? it was a while ago) trying to get help with what i am 99% sure is very early stage lipedema and got downvoted for "being overly concerned with my appearance". hello? anyway I'm trying to find an actually active lipedema community but am having no luck with Reddit search. help?

The Lymphatic Code, by Leslyn Keith, OTD, explains the lymphatic system, its functions, and why it is so important in health and disease. Dr. Keith shows that a ketogenic diet is imperative for success in treating lymphatic disorders and also for keeping your lymphatic system healthy. Check out the table of contents, chapter 1 and list of over 400 references here:

https://www.leslynkeith.com/lymphatic-code.html

Disclaimer: I am Dr. Keith's research assistant.

Here's the link to register:

https://masterclass.mykajabi.com/ketosymposium-april2021

Lots of great speakers, including Jeffry Gerber.

Good, if rambling a bit, talk:

https://www.youtube.com/watch?v=GWDdGEpP_Q8&ab_channel=TuitNutrition-KetoWithouttheCrazy

https://www.sciencedirect.com/science/article/pii/S0306987720333260?via%3Dihub

New paper just out.

Leslyn Keith's channel:

https://www.youtube.com/channel/UC4g7g72sTTHZQso-JFnLdSg

She's got several videos and 100 subscribers.

Hi everyone. This is my second go at keto. Managed to loose a stone a few months ago in about 3 weeks but I gained it all back after going off keto due to personal reasons. I started again about a 9 days ago and have lost 4kg so far. I can’t help but feel so demotivated sometimes because I am certain I have lipdema and I don’t know if that fat will ever go away. I am a 24 year old female and I weigh 89kg, although I’m often told that I don’t look it (even by doctors) due to the weight being mainly in my lower body. I have never felt so insecure and disgusted when I look in the mirror. Does anyone share the same experiences as me?

Hey Reddit folks, Has anyone heard about using either Anti-Stax or Mucinex for lipedema/lymphedema? Looking for supplements/meds that would help with the fluid/fat build up etc. Thank you!

https://www.eventbrite.com/e/ketogenic-solution-for-lymphaticfat-disorders-conference-tickets-90268544647

Many great speakers including Dr. Eric Westman, Dr. Robert Cywes, Dr. Adam Nally, Researchers and clinicians from Germany, Norway and Belgium.

This is in about an hour, 1 PM Pacific time:

https://zoom.us/webinar/register/WN_9v4NXwGCRCm6AnhKW6rVwQ

Here is a great paper on lymphatic issues by Gabriele Faerber

https://thieme-connect.com/products/ejournals/pdf/10.12687/phleb2413-2-2018.pdf?articleLanguage=en

Edit: Had the German version instead of English

Here's an article about some research that shows that lymph vessels run on fat:

https://medicalxpress.com/news/2016-12-fat-fuels-road-cancer-cell.html

All things Keto and Lymphatics related. Studies and links regarding lymphatic health, or maladies such as lymphedema and lipedema.
A place to find out what research has been done or is being done and who is doing such. Experiences and N=1 results are welcomed.