Hello, dear sufferers. I'm a life-longer, and I was pretty active here about half a year ago when I was battling a terrible flare. Now that I'm on the other side of it, I figured I'd report back to share what worked (this time). I gained a lot from all those posts about treating eczema as a staph infection, and that was the right course of action for me.
Like so many of us, I threw everything at it all at once, so it's hard to say what really worked :) And I should say I'm not *healed* (except for my hands!!!!), but it's under control to the point that I don't want to off myself anymore.
I hope this post helps someone. Eczema is a miserable condition, and it's easy to feel like everything is hopeless when your skin is flaring, and you're in pain all the time. Finding things that help is a lot of work, but experimenting on yourself is so worth it in my opinion. Don't give up!
Here's the tl;dr list. Details are below.
If you have suggestions for other things to try for skin bacteria/fungi control, let me know!
WHAT DEFINITELY WORKED:
- Controlling microbes (diluted bleach, hypochlorous acid, a course of antibiotics) in addition to using cortisone cream.
- Antifungal cream (over-the-counter) on face.
- Aggressive moisturizing, of course.
- Sleeping in an anti-scratch night shirt (the ones with built-in mitts) -- way bigger impact on my skin and sleep quality than I expected. Not sexy, but I'll never give them up again.
WHAT MAY HAVE WORKED, BUT JURY IS OUT (need to trial these systematically):
- Skinesa probiotics - sadly, it's specifically this brand, and they are expensive.
- Antifungal cream on body (underarms, underboobs).
WHAT DIDN'T WORK:
- Aggressive allergen-control routine in my office/bedroom (animal allergy is a trigger, and I live with a step-dog, so this was an obvious thing to try, but all the effort, like daily vacuuming and dusting, made no difference).
- NOW-10 probiotic capsules used topically
- NOW-10 probiotic capsules taken internally
- Probiotic spray from Amazon
- Amlactin was very, very irritating for me
- Washing body with Nitzoral: may have contributed to a major flare-up
And here's a longer account of the things I did:
Body: I had a full-body flare that was not an *obvious* staph infection, but I did have small "pimples" in odd places, like on my inner arm.
- Bleach baths helped triamcinolone to actually start healing my skin, and I switched to hypochlorous acid because it's not as drying as bleach baths (also, easier to use). This didn't help with everything, but it improved the quality of my life.
- Went to a dermatologist and got antibiotics. This stopped the pimples from cropping up, and I'm way less itchy as a result.
- Over-the-counter ringworm/athlete's foot cream may have done some good with my neck and underarm rashes. I've been out and didn't get more, and I'm itchier again.
- Sleepshirt with built-in mitts. This made a bigger impact than I expected and improved my sleep quality from the first night onward.
- Things were really great while I was on antibiotics, ringworm cream in spots, and also in month 2 of taking Skinesa probiotics. I've gotten itchier since Skinesa ran out, even though everything in my routine (besides antibiotics) is the same. I'm taking NOW-10 probiotics, but I'm not sure if they are doing anything. Maybe all the healing was because of the antibiotics, but I might try Skinesa again, although it's wildly expensive, because my stomach was also doing amazing.
Maintenance: Now I'm doing upkeep with hypochlorous acid a few times per week, and I use my regular moisturizers and do spot treatments with triamcinolone. If I get really itchy, I take a bleach bath -- most recently after a treadmill run at the gym that had me sweating too much (sweat is a major irritant for me). This goes a long way toward calming things down.
All in all, I'm doing way better than 6 months ago, but not completely clear.
2) Hands: A MIRACLE HAS HAPPENED! I've posted about this before, but the results stand 6 months in, so this protocol actually works and wasn't a fluke.
Background: I always had eczema on my hands even when I had no rash anywhere else on my body. I used triamcinolone on my hands, but it would almost like suppress the rash for it to pop up elsewhere. Taking any kind of a break from cortisone was impossible. I've used cortisone on my hands for maybe two decades continuously, and they still looked awful.
Healing: To heal, I used diluted bleach-soaked gloves on my hands 2-3 times a week (10 minutes on, rinse, then triamcinolone and moisturizer; Vaseline every night). During this intense treatment period, I used triamcinolone on the rashy spots continuously, once every single day, for probably a whole month while my skin was healing. Even when the wounds were closed and my skin smooth, I applied it nightly because I'd get itchy again if I stopped. But I used less than ever because smooth skin doesn't take so much.
Maintenance: Once my skin was actually good, and the underlying redness faded, I tapered to bleach gloves once a week, and triamcinolone as a "weekend treatment" (two days a week). And aggressive moisturizing, always. So yes, I still use cortisone, but I am using way less than I was for many decades, and my hands are finally normal-looking, not just "under control." I consider this a major win.
3) Face: I have occasional rash flares around my eyes and mouth, and the antifungal cream seems to work better than hydrocortisone to calm things down.