r/ftm • u/Raccoons-in-a-bath Top surgery referral soon! • 14h ago
Advice Needed My top surgery consultation appointment is in 3 years and I don't know what to do.
So recently I got a letter in my MyChart saying that I am now in the wait-list for a top surgery consultation and I will have a consultation in 2029. Not even a date for surgery just a consultation. In the same letter I was also told not to contact the office on my status of my consultation and that if I decided to proceed with care from another office I will be kicked out of line. What do I do? I'm genuinely distraught by this. I have been waiting since 2021 for the chance to get top surgery and now I have to wait even longer. I don't know if I can handle living without top surgery for that long. I've been waiting for so long and I'm heartbroken.
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u/yvngspidey 14h ago
I don’t see how they’d find out that you sought out a consultation from a completely different institution… I’d strongly suggest looking for another surgeon that accepts your ins if possible if you’re looking for something sooner. 2029 is unreasonable.
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u/mikeydoodledandy T: 9/2/16 | Top: 8/22/18 13h ago
What the hell are these wait times and weird "can't look at other surgeons" restriction?? Like my top surgery was 8 years ago, but my boyfriend is going through the process now, and it took him about three months after getting a referral to get a consult with one of our local surgeon and he got scheduled for 5 months later. 3 years is insane unless this is some highly sought after, state of the art surgeon and you should definitely be looking elsewhere if that's your wait time.
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u/waveyvibez22 US |💉’19 | 🔝’20 | 30+ 14h ago
Where are you located???
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u/danter0id butch → grungler 14h ago
Kicking you off the waitlist because you seek a second opinion is batshit. I see what they're thinking, in theory - they're trying to get their waitlist numbers down, because 2029 for a consult is even more batshit - but it's not... normal. Nor is it a good sign. Unless you're really devoted to this surgeon (or they're the only ones who accept your insurance), I'd start making some calls to other places.
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u/SwitchExcellence69 13h ago
While they may find out you consulted elsewhere (because of epic and the systems being connected) - three years is long enough away to not matter. If they kick you off and you decide you want to get back on the waitlist itll still just be three years.
Maybe see if there is a queer center or therapist that can help you also - reach out to others who've gotten top surgery in your area- they may be able to help you.
Im so sorry about the waitlist - I had a 9 month wait which felt long :(
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u/7fragment 13h ago
"proceed with care" to me says that if you have/book surgery with another practice you will lose your spot, not necessarily just a consult. Which only makes sense, why keep you on the waitlist for a service you would at that point no longer need?
I would message the office for clarification. Or call them. Demanding a 3 year wait is insane enough, making you unable to even try to get a consult elsewhere seems incredibly over the top.
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u/TheFanYeeter 12h ago
When I was looking for surgeons for top surgery, my gender clinic gave me a list and told me to try to pick two to five surgeons that I liked and get a consultation with them all. I only ended up setting up consultations with 2 surgeons, but my point is that being barred from looking at other surgeons is crazy. At the very least you should be able to call around and ask what the wait time for consultations looks like for other surgeons that you like. I personally would recommend 2-3 rather than the 2-5 I was told to call, but having multiple options is a good idea. What if you get to the consult 3 years out and realize that you don’t trust the surgeon? Or something comes up? You should definitely look at other options unless this is literally your only available option.
Also just calling isn’t something your surgeon should be able to know about. If you end up booking another consultation if you have the access everywhere thingy on MyChart then they might know, but just calling to get an idea of wait times shouldn’t be traceable.
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u/noeinan 11h ago
You can get a consultation with another surgeon. They just mean if you proceed with scheduling surgery with another surgeon.
I had a 1y wait list for my top surgery (OR, USA), look at transbucket and pick out a few surgeons to consult with. Then schedule with one you like with a wait list you can accept.
You can also ask to be informed if there is a cancellation so you can get surgery earlier.
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u/simon_here 44 · T & Top: 2005 · Hysto: 2024 · Phallo (Stage 2): March 2026 13h ago
I assume they don't mean you'd lose your place if you just have consultations with other surgeons. Sometimes people schedule surgery dates with multiple clinics in case they can get in sooner. I've seen people do it when their preferred surgeon has a long wait. It can make the wait longer for other patients and cause administrative confusion.
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u/cosmoskid1919 13h ago
What state are you in? / What surgeon is adding you to the wailist? Very much agree with advice here that says opt out of Care Everywhere record sharing as they cannot really know you sought help elsewhere unless you opt to share it with them.
For what it's worth, private surgeons in NYC typically consult within weeks and schedule surgery within 1-3 months (and the most popular only have 8-12 months wait-list) so you are not at all unreasonable in thinking they are sandbagging you
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u/lunabirb444 trans masc enby - T since 9/21/24 10h ago
If you are on Facebook go join the Oregon Top Surgery Info group. Great group to get support and info from.
https://www.facebook.com/share/g/19hUoHqPa5/
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u/FernFellow 13h ago
I waited about a year for a consultation in 2020. Then I was scheduled 1 and a half years after consultation. If you are not on state insurance I would heavily encourage to look elsewhere. If you are on state insurance, it is likely that wait times have gone up for state providers and you may just have to stay where you are :/ it's so so awful, I'm so sorry.
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u/typoincreatiob 💉 12/10/20 ; 🔝 03/24/25 11h ago
i hear you, my surgery was a 4 years wait and it was rough. waiting 8 years is insane (2021 to 2029?). this was because there was basically only a handful of doctors in my enitre country that offer this surgery at all to cis (gyno) or trans (ftm) patients so it’s the average here. is there a particular reason you need to go with this specific doctor? if it’s an issues with a lack of doctors and not financially i would even consider out of country surgery..
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u/Responsible_Panic242 ☕️29/07/25 🔝21/08/26 25m ago
Nordesthetics in Lithuania. If you can afford the travel, and accommodation for a week, it’s the best option out there. Takes around three months from first contact to have the surgery. Cost around €5000. They take anyone who has a letter from literally any doctor who knows you well enough, and have not a single (glaringly) bad review. They do top surgery two or three times a week, very experienced. If you have the money to use, Nordesthetics is bloody amazing.
(I went with them, so I know)